Sexual and Reproductive Health of youth and adults with disabilities in Bujumbura - Burundi (HANDI-SSR)


Background: Around 15% of the world population lives with disability. 80% lives in developing countries. In Sub-Sahara Africa, People with Disability (PWD) seem to be particularly vulnerable to Sexual and Reproductive Health (SRH) adverse outcomes because of high level of poverty, social exclusion, sexual violence and of barriers to access information. The few studies available on Young People with Disability (YPWD) have shown similar issues. However, PWD/YPWD are often left behind in SRH programmes because reliable data on their situation is scarce. In Burundi, there is no reliable data on disability or on PWD's SRH. Therefore, recognizing the need for reliable data to help protect the Rights of PWD/YPWD and achieve a better inclusion of disability in policies and practices, Burundian SRH authorities asked the consortium's members to conduct a study addressing the knowledge gap in PWD/YPWD SRH.

The general objective of this study is to provide quantitative and qualitative information on the unmet needs of PWD, specifically the young ones, regarding their SRH in comparison with non-disabled persons.

The design will follow an interdisciplinary approach triangulating quantitative and qualitative data collected thanks to epidemiologic, demographic and sociologic methodologies. A cross-sectional survey including 600 PWD/YPWD and 600 controls will assess the sexual and reproductive life-course history, the SRH knowledge, attitudes and practices, the HIV prevalence and determine the unmet needs in SRH. The qualitative study will focus on YPWD and will include individual interviews, focus groups and participant observations to deepen our understanding of some critical aspects of YPWD vulnerability.


Professional publication

  • GB Beninguisse(2017): Risk assessment Plan
  • GB Beninguisse(2017): Mapping of Organizations of persons with disabilities & Network of counseling and care organizations for people infected with HIV in Bujumbura
  • GB Beninguisse(2017): Disability questionnaires
  • GB Beninguisse(2017): Research protocols (Quantitative & Qualitative compoents)
  • GB Beninguisse(2017): Ethical and administrative clearance
  • GB Beninguisse(2017): Sampling report
  • GB Beninguisse(2017): Informed consent form (Screening component)
  • GB Beninguisse(2017): Kick-off workshop
  • GB Beninguisse(2017): Screening Questionnaires
  • GB Beninguisse(2017): Interviewers training programme
  • GB Beninguisse(2017): HIV testing Algorithm
  • GB Beninguisse(2017): Informed consent form (Disability component)
  • GB Beninguisse(2017): Manuals
  • GB Beninguisse(2017): Informed consent form (Qualitative component)
  • GB Beninguisse(2017): Briefing Note


Project number

W 08.560.005

Main applicant

Prof. G.B. Beninguisse

Affiliated with

Institut de Formation et de Recherche Démographiques (IFORD)

Team members

S. de Banguirys, J. de Dieu Bamboneyeho, E. Ekambi, F. Essomba, C. Mouté Nyonkon, J. Nduwimana, V. Nigiyimana, A. Tchoumkeu