Sexual and Reproductive Health of youth and adults with disabilities in Bujumbura - Burundi (HANDI-SSR)


Coordinator: Gervais Beninguisse (IFORD, Cameroon)

Consortium partners

  • Pierre De Beaudrap (IRD, France)
  • Pierre Claver Kayiro (ISTEEBU, Burundi)
  • Emery Barutwanayo (Nouvelle Espérance, Burundi)
  • Dominique Niyondiko (FSEG/Université du Burundi)

Summary of progress

The aim of this study is to provide quantitative and qualitative information on the vulnerability of People with Disabilities (PwD) regarding their SRH. This includes estimates of the frequency of different adverse SRH outcomes (including HIV infection), identification of risk factors for these outcomes and barriers to access prevention services and health care for HIV or SRH. The quantitative component is a population-based cross-sectional survey conducted in the general population using: (i) a random sampling to identify 600 PwD aged 15-49 years old and 600 controls matched for age, sex and residential area; (ii) the Washington Group questionnaire on disability, currently the most validated disability screening tool; (iii) Life-event interviews and HIV testing. The qualitative component focuses on youths (10-24 years) and investigates how individual, structural and environmental factors interact with specific impairments to shape SRH outcomes in disabled young people. As of 31/08/2017, the following preparatory activities for data collection have been completed: Ethical & administrative clearance, Research protocols, Sampling, Data Collection tools & tests, Preparation and test of database for tablets, Kick-off Workshop, Recruitment & Training of Field staff, Mapping of Disable People Organizations, Sensitization of local authorities/civil societies. Data collection will begin on 01/11/2017 for 12 months.


Background: Around 15% of the world population lives with disability. 80% lives in developing countries. In Sub-Sahara Africa, People with Disability (PWD) seem to be particularly vulnerable to Sexual and Reproductive Health (SRH) adverse outcomes because of high level of poverty, social exclusion, sexual violence and of barriers to access information. The few studies available on Young People with Disability (YPWD) have shown similar issues. However, PWD/YPWD are often left behind in SRH programmes because reliable data on their situation is scarce. In Burundi, there is no reliable data on disability or on PWD's SRH. Therefore, recognizing the need for reliable data to help protect the Rights of PWD/YPWD and achieve a better inclusion of disability in policies and practices, Burundian SRH authorities asked the consortium's members to conduct a study addressing the knowledge gap in PWD/YPWD SRH.

The general objective of this study is to provide quantitative and qualitative information on the unmet needs of PWD, specifically the young ones, regarding their SRH in comparison with non-disabled persons.

The design will follow an interdisciplinary approach triangulating quantitative and qualitative data collected thanks to epidemiologic, demographic and sociologic methodologies. A cross-sectional survey including 600 PWD/YPWD and 600 controls will assess the sexual and reproductive life-course history, the SRH knowledge, attitudes and practices, the HIV prevalence and determine the unmet needs in SRH. The qualitative study will focus on YPWD and will include individual interviews, focus groups and participant observations to deepen our understanding of some critical aspects of YPWD vulnerability.


Professional publication

  • GB Beninguisse(2017): Manuals
  • GB Beninguisse(2017): Kick-off workshop
  • GB Beninguisse(2017): Research protocols (Quantitative & Qualitative compoents)

Publication meant for a broad audience

Publications for the general public


Project number

W 08.560.005

Main applicant

Prof. G.B. Beninguisse

Affiliated with

Institut de Formation et de Recherche Démographiques (IFORD)

Team members

D. Akajeo Nafack, S. de Banguirys, Dr. E.B. Barutwanayo, Dr. P. De Beaudrap, J. de Dieu Bamboneyeho, J. de Dieu Bamboneyeho, L.C. Dongmo Temgoua, E. Ekambi, F. Essomba, L.C. Essomba Mengong, C. Mouté Nyonkon, V. Nigiyimana, Dr. D. Niyondiko, A. Tchoumkeu